My Baby’s Growing Up!! Woohoo!

For the last two weeks, C’s been staying home alone while I go to work.  Believe me, this has been pretty scary for me, but it’s working.  Not only that, but it’s working better than him coming in to work with me.

When he’s at work, he sits.  All. Day. Long. in my office on a computer or reading.  And he’s snacking out of boredom. All. Day. Long.  His blood sugars are letting me know loud and clear that he should have more activity in his life.  His mood is telling me that he needs more stimulation than my small office (and Netflix) can offer.

I have alarms set, every two hours, on his phone to remind him to test and call me.  He’s been great.  He has strict orders to eat real-live meals and not snack on junk food all day.

Today I realized how independent he is and how proud I am of him.  I signed him up for a class at the community college for kids going into 7th and 8th grade.  It’s only for 4 day, 3 hours a day.  He started today.  I walked up to the teacher and said, “Hi,  I just wanted to let you know that my son, C, has type 1 diabetes.  You’ll notice him testing his blood sugar in class.  He also has water to drink and candy he may need to eat, would you like him to move somewhere else, away from the computer if he needs to eat or drink?”  He said, “That’ll be fine, did he bring me some candy, too?”  we laughed and I left.  I realized how much easier it was this year than the other times I’ve left him somewhere new.  The difference is the confidence I have in him.

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RIP Pump #1

On Friday afternoon I got a phone call from C letting me know that while swimming (with his summer day-camp), he noticed his pump’s screen was filled with water and he couldn’t get it to turn on.

Yes, that’s a small lake of water in the bottom of the screen

*Yes, the Ping is waterproof.  Yes, I’ve let him swim even with the new one already.  No I don’t think it’s a problem.  C’s Ping has been in the ocean, many swimming pools, jacuzzis (oops! taken off quickly), and water slides and lazy rivers at the water park.  I completely trust its waterproofness.  I later discovered that there was a small tear in the rubber covering the buttons that allowed the water in. 

I called Animas and a new pump was scheduled to be delivered the next morning.  It would end up being about 18 hours later.  I tried to get a hold of his Dr. and another Dr. that he’s seen to double check the amount of Lantus I should give.  I didn’t hear back from anyone for about 3 more hours.  Only 15 hours left until he should be back on a pump.  As soon as the pump should have arrived, we were to be jumping in the car and heading to Dodgers Stadium for the game.  I did not want to deal with overlapping the Lantus and the pump’s basal.  I didn’t want to deal with trying to figure out when the Lantus quit working and the pump started.  I would’ve been happy to under normal circumstance, but not while we’re out trying to watch baseball and eat stadium food in under the blazing hot sun.  I wanted “easy.”

This may or may not be for everyone, so please don’t take advice from me…  I decided to forgo the Lantus and just give corrections every 3 hours. (Yes, I checked with his Dr. to make sure they thought it would be ok FOR US)  It ended up going really well and his numbers were suprisingly “in range” (I’m calling under 200 “in range” when we’re talking about no basal).

At bedtime his number was 117 and he wanted something to eat.  It would’ve only been about 3/4 unit of insulin to cover it and he didn’t need a correction.  I was torn as to whether or not he should give another shot.  I decided against it being that we’d be correcting soon enough.

When I walked in his room carrying a meter, alcohol, a syringe and a vial of insulin I felt fine.  I moved his blanket to find his hand and immediately it hit me.  My son looking so perfect was falling apart on the inside.  I knew his body was being ravaged from that stupid GoGurt he ate.  I realized how the pump masks the issue so well.  Sure there are highs and lows but they always seem so easily treatable.  Knowing there was no pump and no basal, the reality of what would happen if my son didn’t have insulin hit me very hard.  My stomach was so tight waiting to see his number 347 pop up and the 0.7 right after on the ketone meter.

I had to try to wake him from a deep sleep, get him down from his bunk bed and into my room so he’d wake up enough to give himself an injection (he did not want to grant me permission to do it in his sleep).  Two hours later he was in the low 200s with no ketones and had to get up to give another shot.  He was hovering around 100 when we woke up and 97 three hours later when we were getting ready to leave for the stadium.  It’s really interesting seeing how the body reacts when it’s in shock like that.  His numbers were actually super manageable.  Not what I’d expected.

p.s. whole other story but…. UPS didn’t get his pump delivered in time for us to have to leave.  Luckily I text messaged the rep in Los Angeles who we’ve gotten to know pretty well.  He met us 15 minutes away from Dodgers Stadium to hand us a loaner pump.  What a blessing!

Silly Questions

Once a year we travel to UCLA to meet a special team of endocrinologists that C’s insurance, evidently, trusts more than our own.  They do a thorough overview of C, his diabetes, his pump settings, A1c, etc.  They ask a million questions and then submit paperwork to our insurance that a)Yes, we’re taking care of his diabetes, b)Yes he does need all that stuff you’ve been paying for.

When I’m filling out the paperwork this one question really sticks out to me.   Like, seriously, is there a weirder question to ask on medical paperwork regarding a child on insulin??

Yes. Countless. Eat Sugar.

Mother Lover

Tonight during dinner my kids serenaded me with a freestyle rap called Mother Lover.

It was about how much they love me.

 

I wish I’d had a video camera so I could watch it when they hate me.

Marble Slab

As I may have mentioned many times before, we go to RedBrick Pizza every week or two for their delicious gluten free pizza.

A few doors down from them is a Marble Slab Creamery.  A couple months ago I gave in and we stopped there for some dessert.  I explained C’s celiac disease.  I asked to see their ice cream ingredients, I asked them to use a clean scooper and I asked them not to mix C’s ice cream on the slab, just to put the toppings on top.  Like toppings.  They gave him an extra big bowl so he’d have room to mix his own gummy bears or sprinkles or whatever it was he had.

Since then, we’ve gone a few times.  Maybe 5 or 6?  It not always the same person working, I think we’ve come across two or three people.  The last time we went in something magical happened.   As I was about to order I noticed her walk over and grab a clean scoop, I didn’t think much of it.  Just thought it was time to grab a new one.  I ordered “one scoop bubble gum ice cream with gummy bears…”

She cut me off.  “Not on the slab, right?”

She remembered us!  Can you believe that?  It was so rad realizing that the more we go out, the safer C gets.  The more people we inform of his needs, the more people will help him.

Team Party Time Again

 

Last night I received a mass-email from E’s soccer coach. He was telling us that he got coupons for free pizza from that same nightmare pizza place I spoke about before. Most teams locally have their party there because they give free pizza/drinks.

I was torn about whether or not I tell the coach our big schpeal about why we won’t step foot there or if I should just not tell E about the party and call in sick at the last-minute. I decided to do a little schpeal.

I emailed him and said that I thought the idea of a team party was great, and that I didn’t like to be the party-pooper but that we’d had personal issues with the owner of this particular joint and would not be going into her restaurant again. I also told him that we normally don’t go to pizza places due to my other son’s celiac disease and need to be on a gluten-free diet. I told him that RedBrick has a great gluten-free option and that was really the only place we went for pizza (our first team-meetup happened to be at RedBrick without me even suggesting it).

Today, I received another mass-email from the coach to the team asking if Tuesday at 6:30 would work for everyone and stating that we were planning on moving the party back to RedBrick since that’s where our team began anyways.

I sent him a thank you and told him we’d definitely be there. It’s crazy how just a little accommodating gesture can make you feel so good. That and the fact that I took 7 other families out of that crazy bitch’s restaurant!! Score 2 for me!

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Diet Suicide

My kids are big fans of suicide… not the real deal… the soda mixing deal.  That’s what we called it when I was a kid, do other people call it that?  You know, when you mix all the flavors from the soda fountain?  I hope so or else this whole thing already sounds weird.

I never really bought soda for the house before diabetes came along but if we went out somewhere that had a soda fountain though, I’d let them have at it.  I’m no longer a fan of the mixed soda, but they always love it. 

We went to see the Clippers play the other day.  On our way home we had a car full of four hungry kids who were driving me nuts.  We HAD to make a stop at McDonald’s.  And guess what?!!!  The one in Encino had Diet Coke AND DIET DR. PEPPER!!  C was so excited to make a diet suicide!  Woohoo for restaurants that have more than just one diet option!!

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p.s. A lot of people around me think that C can’t have sugar or soda BECAUSE they see me giving him diet sodas.  I just want to clear it up that diet sodas = no hassles with blood sugar.  He CAN have regular soda, it just means it’s one more thing to THINK about.  I have to figure out how many carbohydrates to give insulin for it, assuming he’ll drink all of it.  I have to factor in the amount of exercise he’s getting.  I have to understand that the sugar from the soda will hit him fast, there is no protein, fat or fiber to help slow it down.  Full on, liquid sugar is just tricky.  Diet is not.  When we are at a party though and C’s only option is DIET COKE, just like everywhere else, and everyone else is drinking Sprite or Root Beer and that’s what he wants, as long as we’re not already in the middle of a blood sugar nightmare, I let him go for it.