Silly Questions

Once a year we travel to UCLA to meet a special team of endocrinologists that C’s insurance, evidently, trusts more than our own.  They do a thorough overview of C, his diabetes, his pump settings, A1c, etc.  They ask a million questions and then submit paperwork to our insurance that a)Yes, we’re taking care of his diabetes, b)Yes he does need all that stuff you’ve been paying for.

When I’m filling out the paperwork this one question really sticks out to me.   Like, seriously, is there a weirder question to ask on medical paperwork regarding a child on insulin??

Yes. Countless. Eat Sugar.

Lower Lows and Losing Insurance to Boot

I’m up late.  This is way late for me.  I’m in the middle of another battle with C’s lows.  He was at 90 before bed.  I gave him a bowl of ice cream with caramel topping.  About 18-20 carbs.  No insulin.  Thirty minutes later he tells me he’s low.  45.  Here we are back to around 90…7 juice boxes later.  He’s refusing to eat or drink anymore because he’s “full.”  So, I’m testing him every 15 minutes for now to make sure he’s moving upward instead of pulling another U-Turn and going back down.
While sitting here I noticed the mail is still on my desk.  One piece is a notice from Medi-Cal.  It’s telling me that they’ve dropped my children’s health insurance coverage because I’m making too much money.  This is really hard for me.  Here’s my long boring story.  I need to rant apparently.
My kids were on Healthy Families for years.  It’s regular insurance but with lowered rates according to your income.  It’s great insurance.  Then, when C was diagnosed with diabetes we found out that they don’t cover chronic illnesses, so we get referred to another program, California Children’s Services, that covers everything related to that.  It’s amazing.  He has 100% coverage and so far the only thing they haven’t approved is CGM and that’s ok (for now).  Then, my hours at work dropped due to 1) the economy wreaking havoc on my job 2) me missing lots of work due to Dr. appts and illnesses.  That’s when Healthy Families needed my annual renewal information.  I promptly received notice that I did not make enough money for the program and would be referred to Medi-Cal.
I receive money from Unemploment for the hours I’ve been cut at work.  Unemployment has a lottttt of paperwork to deal with in these times and sometimes it takes a very long time to receive your check.  Sometimes it doesn’t.  I didn’t receive any money from Unemployment in December or January.  In February, I received all three months worth in a matter of weeks.  This happened to be the month that Medi-Cal wants all of my info for their review…  Of course.
So, it looks like I’m rolling in the money according to February.  I got my letter today stating that I’m over the income limits and as of March 31st, my children will no longer be covered.  So, I guess I move forward and reapply for Healthy Families.  But now, if I don’t get extra checks the month that they want to see how much I make, they’re going to deny me and refer me back to Medi-Cal.  It’s such a stupid cycle to be stuck in.  It’s annoying enough with no medical issues, but throw in Diabetes, Celiac and all of the blood work, Dr.’s appts and supplies and this is just about overwhelming.

bad diabetics? seriously?

I just spoke to a friend of mine about a mutual friend who has type 1 diabetes.  She called him a “bad diabetic” and said it would probably be a good thing for him to spend time with me and maybe I’d rub off on him some.  This made my skin crawl.  I asked what it meant and she said he parties (drinks) and has gained weight and so whenever she sees him she “makes him test and report his number” to her and she “lectures him on what he should  be eating.”  These are her words, I’m not rewriting them.
I was really annoyed by this because I’m picturing people talking about my son like this down the road for living a “normal” life.  Obviously she knows how to manage her husband’s type 2 diabetes and that’s great for them.  It’s too bad that she’s applying that elsewhere though.  I realize that I’m very obsessive about things being perfect.  I weigh and measure everything my son eats.  No estimating allowed in our household.  I know that it will change when he’s older, but I figure the tighter the rules are while he’s learning them, the better.
The thing is, my son’s been handed some amazing opportunities that others may not have.  My son has a mother (who is obsessive) who only works part-time and has internet access to do all the research I can possibly do.  My son has amazing insurance.  He has a prescription for 12 test strips per day that are fully covered.  There’s no reason that we can’t test him every single time we need to or just want to double check.  Not everyone has that luxury.  I have a neighbor who’s insurance covers 4 strips per day.  She pays out of pocket for most of her diabetes supplies.  She was recently laid off of her job.  She can’t test every time she eats.  She can’t test everytime she feels low and then again in 15 minutes to make sure she’s back on track.  She lives her life normally and tests when she can.  Then she gives correction doses.  She does not give insulin according to an insulin-to-carb ratio.  She can’t afford to.  The sad part is that she can’t afford not to either.
C has insurance that has recently paid for a $6,000 insulin pump and I had no copay.  I feel like we have the tools that we need placed before us and it would be a sin to let not use everything that is available.
So, maybe this “bad diabetic” she spoke of doesn’t have these opportunities.  Perhaps he’s trying to do the best he can with what he has to work with.  I guess outsiders might not understand that though.

Seriously?

Just got a call from C’s insurance.  They can’t authorize the pump until he sees a panel of Dr.s at UCLA and they make a determination as to whether or not they think he’s ready for a pump.  She also told me not to hold my breath because the last girl she sent to get authorization, they met with her and decided to wait and see her again in 3 months and make their decision at that point.  What??  Ok, whatever, I called UCLA to make the appt and they tell me the soonest they have is June.  I felt like I was in the Twilight Zone.  I’m told this morning we may not have to wait the full 6 months from diagnosis and a few hours later I’m told I’ll have to wait a year from diagnosis?  I about lost it.  But I knew who to call.  C’s lovely nurse.  She calmed me down instantly by telling me it was BS.  I did not need to go down there.  She told me the Dr. I need to talk to and fortunately he’ll be in the office (our normal office) tomorrow.  She told me she’ll talk to him an he has veto power.  I asked his name and just by chance, it happens to be the same Dr. that E has an appt with tomorrow morning.  When we were there for C today, I made an appt for E.  His regular pediatrician moved away, so I told them to schedule it with anyone.  What are the chances?  Well, I guess if you’re talking about my life, the chances are pretty good.  With as much negative that I have to find my way out of, it always seems to work out for me.  Everything in my life definitely happens for a reason.  Sometimes it’s just frustrating figuring out what the heck that reason is.