On Friday afternoon I got a phone call from C letting me know that while swimming (with his summer day-camp), he noticed his pump’s screen was filled with water and he couldn’t get it to turn on.
*Yes, the Ping is waterproof. Yes, I’ve let him swim even with the new one already. No I don’t think it’s a problem. C’s Ping has been in the ocean, many swimming pools, jacuzzis (oops! taken off quickly), and water slides and lazy rivers at the water park. I completely trust its waterproofness. I later discovered that there was a small tear in the rubber covering the buttons that allowed the water in.
I called Animas and a new pump was scheduled to be delivered the next morning. It would end up being about 18 hours later. I tried to get a hold of his Dr. and another Dr. that he’s seen to double check the amount of Lantus I should give. I didn’t hear back from anyone for about 3 more hours. Only 15 hours left until he should be back on a pump. As soon as the pump should have arrived, we were to be jumping in the car and heading to Dodgers Stadium for the game. I did not want to deal with overlapping the Lantus and the pump’s basal. I didn’t want to deal with trying to figure out when the Lantus quit working and the pump started. I would’ve been happy to under normal circumstance, but not while we’re out trying to watch baseball and eat stadium food in under the blazing hot sun. I wanted “easy.”
This may or may not be for everyone, so please don’t take advice from me… I decided to forgo the Lantus and just give corrections every 3 hours. (Yes, I checked with his Dr. to make sure they thought it would be ok FOR US) It ended up going really well and his numbers were suprisingly “in range” (I’m calling under 200 “in range” when we’re talking about no basal).
At bedtime his number was 117 and he wanted something to eat. It would’ve only been about 3/4 unit of insulin to cover it and he didn’t need a correction. I was torn as to whether or not he should give another shot. I decided against it being that we’d be correcting soon enough.
When I walked in his room carrying a meter, alcohol, a syringe and a vial of insulin I felt fine. I moved his blanket to find his hand and immediately it hit me. My son looking so perfect was falling apart on the inside. I knew his body was being ravaged from that stupid GoGurt he ate. I realized how the pump masks the issue so well. Sure there are highs and lows but they always seem so easily treatable. Knowing there was no pump and no basal, the reality of what would happen if my son didn’t have insulin hit me very hard. My stomach was so tight waiting to see his number 347 pop up and the 0.7 right after on the ketone meter.
I had to try to wake him from a deep sleep, get him down from his bunk bed and into my room so he’d wake up enough to give himself an injection (he did not want to grant me permission to do it in his sleep). Two hours later he was in the low 200s with no ketones and had to get up to give another shot. He was hovering around 100 when we woke up and 97 three hours later when we were getting ready to leave for the stadium. It’s really interesting seeing how the body reacts when it’s in shock like that. His numbers were actually super manageable. Not what I’d expected.
p.s. whole other story but…. UPS didn’t get his pump delivered in time for us to have to leave. Luckily I text messaged the rep in Los Angeles who we’ve gotten to know pretty well. He met us 15 minutes away from Dodgers Stadium to hand us a loaner pump. What a blessing!