Summertime

We have had a really busy last couple of weeks!

We have a local group of type 1 families that get together now and then.  Sometimes with kids, sometimes just moms (and occasionally dads).  It stemmed from Diabetes Outdoors and sort of took off from there.  We have a facebook group where we can all ask questions, share thoughts, or just be constant support.  Last year, a handful of us went to diabetes camp together.  This year, I think we had 14 families come along!  It’s so awesome to get to build on friendships but even better that we’re also building relationships and friendships for our kids in their own community.  They’re all different ages and genders, but they all get to know each other, have get-togethers and know that their parents are all friends.

This is just the families from our local area at camp! We made up about 40% of the population that weekend!

The following weekend, Bret Michaels was playing at our county fair and we decided to take a bunch of the kids.  Parents worked together to get a hold of his manager and they decided to allow a quick meet and greet before he played.  As we lined up for a picture he said if anyone needed anything, they’ve got lots of supplies.  I responded that the same went the other way, if he needed anything, we’d all have plenty of supplies with us and he said, that’s right, we’ll take care of each other.  Pretty cool.  He signed autographs for a few kids and generally seemed like a good guy.

Kids waiting for Bret Michaels

Camden meeting Bret Michaels

Then, last night we went to a Dodger game.  I’d won tickets in a drawing from JDRF just a few days before and figured it would be great training for Miss Molly!  As we walked into the stadium we were shocked to see a guide dog group was in the same section as us with several of their puppies-in-training!  I talked to a couple of the girls and found out that none of them had been there with the dogs before either.  We were all wondering how these big dogs would fit, but it worked!  We brought a “place” (rug) for Molly to lay on under our seats and she did great.  We had to clear out piles of  peanut shells that were tempting her (I’m pretty sure she found a few strays to snack on) but otherwise she fit just fine.  Although she was in super tight quarters, she was on excellent behavior and twice scooted herself around to reach and grab her bringsel (C was running pretty high for some unknown reason).  Without any commotion or having to get up she grabbed it, we responded by testing C and then gave her a treat and lots of petting.  She was able to keep her excitement totally under control and stay right where she was.  I’ve often wondered how alerts will work in certain situations and this eased all concerns I’ve had.  I did take her up to the deck above our seats to get a drink of water and walk her around a bit and I think most people were surprised to see a big dog walking up the stairs.  She was such a good girl, I don’t think most people had realized she was there!

Miss Molly checking out the game

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The Scary Part of Independence

The other day I posted about how great it is being able to leave C alone and how wonderful he is at taking care of himself… Well, today I had a bit of reality thrown at me.  Although, I typically don’t blame diabetes or get angry with diabetes (anymore!), I definitely felt the unfairness of it today.

Last night, E and I went to the Dodgers game (they lost) and C stayed at his friend’s house until we got home at midnight.  This morning I decided to let him sleep when I went to work due to that.  I tested him and gave a correction bolus.  Woke him slightly to tell him I was leaving and that was that.

About an hour later I texted him asking if he was awake yet.  No answer, still sleeping?  I called about 15 minutes later, no answer.  I texted again with no answer.  I tried to call my roommate but got a text back that she was at work.  I called him probably a total of 20 times over the next 15 minutes.  I called the house phone (which we never answer because we only use it to call 911 and don’t give out the number) and of course, he didn’t answer.

I jumped in my car and headed home.  The entire way trying to mentally prepare for what could be the worst.  Picturing my son unconscious, maybe seizing, maybe dead.  Wondering if he had already been dropping this morning when I gave the correction dose and I’d pushed him too far.  Thinking about the people who have expressed that they don’t think I should let C stay home alone because of D and how I’m going to want to punch them for judging me if something happens to him.  Thinking of his Dr. and how she probably wouldn’t approve of ‘her’ kids being left home alone and how diabetes is the one to blame in all of this.  I’d never ever have these awful thoughts in my head if it hadn’t shown up in our lives.  But it did.  I haven’t felt that angry in a long time.  Granted, I have a lot of other SHIT going on in my life which probably helped me reach that level of being upset, but I just truly fell back into my old(er) thoughts of just feeling that C and I were cheated.

Of course he was fine.  Of course he was sitting on the couch playing video games and eating popcorn.  Of course he left his phone, on vibrate, in his bedroom and totally forgot to call me when he tested.  Ya, he heard the house phone ringing off the hook and thought it was weird but it never occurred to him that someone would be calling HIM on that phone.

I went over the rules with him again and added a new one that if the house phone rings twice in a row or even more he needs to start answering it.  I have been really pushing myself to think of C, not a kid with diabetes, in all situations.  If he hadn’t been diagnosed with this would I leave him home alone at 12 years old?  Yes, without a doubt.  So, scary or not, that’s what I’m going to do.

Mother Lover

Tonight during dinner my kids serenaded me with a freestyle rap called Mother Lover.

It was about how much they love me.

 

I wish I’d had a video camera so I could watch it when they hate me.

Marble Slab

As I may have mentioned many times before, we go to RedBrick Pizza every week or two for their delicious gluten free pizza.

A few doors down from them is a Marble Slab Creamery.  A couple months ago I gave in and we stopped there for some dessert.  I explained C’s celiac disease.  I asked to see their ice cream ingredients, I asked them to use a clean scooper and I asked them not to mix C’s ice cream on the slab, just to put the toppings on top.  Like toppings.  They gave him an extra big bowl so he’d have room to mix his own gummy bears or sprinkles or whatever it was he had.

Since then, we’ve gone a few times.  Maybe 5 or 6?  It not always the same person working, I think we’ve come across two or three people.  The last time we went in something magical happened.   As I was about to order I noticed her walk over and grab a clean scoop, I didn’t think much of it.  Just thought it was time to grab a new one.  I ordered “one scoop bubble gum ice cream with gummy bears…”

She cut me off.  “Not on the slab, right?”

She remembered us!  Can you believe that?  It was so rad realizing that the more we go out, the safer C gets.  The more people we inform of his needs, the more people will help him.

Team Party Time Again

 

Last night I received a mass-email from E’s soccer coach. He was telling us that he got coupons for free pizza from that same nightmare pizza place I spoke about before. Most teams locally have their party there because they give free pizza/drinks.

I was torn about whether or not I tell the coach our big schpeal about why we won’t step foot there or if I should just not tell E about the party and call in sick at the last-minute. I decided to do a little schpeal.

I emailed him and said that I thought the idea of a team party was great, and that I didn’t like to be the party-pooper but that we’d had personal issues with the owner of this particular joint and would not be going into her restaurant again. I also told him that we normally don’t go to pizza places due to my other son’s celiac disease and need to be on a gluten-free diet. I told him that RedBrick has a great gluten-free option and that was really the only place we went for pizza (our first team-meetup happened to be at RedBrick without me even suggesting it).

Today, I received another mass-email from the coach to the team asking if Tuesday at 6:30 would work for everyone and stating that we were planning on moving the party back to RedBrick since that’s where our team began anyways.

I sent him a thank you and told him we’d definitely be there. It’s crazy how just a little accommodating gesture can make you feel so good. That and the fact that I took 7 other families out of that crazy bitch’s restaurant!! Score 2 for me!

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Couch Fort

E just build a couch fort and made an announcement…

“This is where I live now.  Forever.”

Grandma: “Forever?”

“Well, forever until I’m 10.”

pauuuuuuse.

“I mean 8.  I’m staying in here and never coming out until I’m 8.”

pauuuuuuse.

“Except for on Christmas.”

“I live here now until I’m 8.  I’m not even coming out on Thanksgiving.”

pauuuuuuse.

“Unless there’s turkey.  I’ll come out on Thanksgiving only if there’s turkey.”

pauuuuuuse.

“And maybe on Halloween.  And on Christmas.”

Making Beds

Surprise! Es getting mentioned on my blog after a super long break!
E used to be the biggest helper, always wanting to clean up. Not lately, total slob. So yesterday he was ready for daycare in the morning so I suggested he go make his bed so he’d have somewhere nice to sleep later. And he did. I was so surprised. BUT I praised his good job, gave a high-five and we took a picture of how great it looked.
Apparently that’s how you motivate him. Today he made his bed without being asked. AND, he took a picture. Then he offered to make my bed (since he was the one who threw my blankets on the floor) and he took a picture of that. Then, he headed to C’s room and made his, and of course took another picture.

E’s Bed Made
E’s Bed Made AGAIN
Mom’s Bed Made
Even C’s Bed Made