You Are Getttttting Sleeeeeepy

Last night we couldn’t shake the lows, or maybe the “too-low-for-bed”s.  A 65 at bedtime got 24 carbs of ice cream.  3o minutes later a 59 got a juice box.  20 min later he was 96.  Cool, removed pump and he took a shower.  Came out 40 minutes later bg 87.  I lowered his pump to -50% and he had some popcorn.  Normally I wouldn’t dream of keeping that 50% for more than 2 hours TOPS, but I can’t wake up to alarms anymore.  It’s like my brain is so used to hearing them that it just doesn’t care anymore.  Sometimes I’ll hit snooze for 2 1/2 HOURS before I realize I was supposed to get up!!!  After that much alarming, I feel like I didn’t get a wink of sleep.  Anyways, I left it at -50% for four hours. JUST IN CASE.  When I finally did get up to check he was 386.  Not cool.

Two weekends ago the plan was to do night basal testing.  I set alarms for every 90 minutes for the entire night.  I woke up in the morning and realized I didn’t get up ONCE!  What the heck?!?

 

So.  The plan?  My mom’s on the hunt for a hypnotherapist for me.  She’s going to find one that can hypnotize me to wake up when I hear the alarm.  Not only that, wake up feeling refreshed.  I’m pretty excited.  She got hypnotized when I was a baby to quit smoking.  They had her picture picking up one of those gross spit pots (like in an old saloon) and drinking from it every time she thought of smoking and it worked!

 

What if this helps?!  It could be the greatest thing for a D’rent ever!  Wake up easily? Feeling refreshed?  Sounds freaking great.  I’ll be sure to update when she finds my miracle-worker.

 

Alexis’ MeMe

Alexis Wants To Know!

I bore my kids.

For informative purposes: C is 11 years old.  Diagnosed with diabetes July 2009, just after turning 10.

When did you guys start pumping?
He started pumping in January 2010, almost 6 months after diagnosis with the Animas One Touch Ping.

What do you use to change sites? Whats your “process”?
We use IV Prep but that’s about it.  If it’s a bleeder when we peel it back off, I’ll use some Neosporin.

How often do you check ketones?
I check for ketones if he’s reallllly high and feels sick.  Or reallllly high and a correction doesn’t bring it down (after and hour and a half or so).  Or when he’s just ‘regular’ sick.  Sometimes if I realize that he’s been high for a while (last few BG checks) we’ll test.

When do you do an unscheduled site change?
We pretty much don’t.  They used to get pulled off of his tummy a lot, but now he won’t allow them there.  On his upper booty, they don’t get pulled off.  A few times I’ve changed early due to persistent highs or persistent highs with ketones.  I always wait out at least one correction before doing so.  As long as I have patience, it has usually worked out.

Whats your childs target?
daytime is 90-120.  Nighttime is 140-170.  Those are the settings in the pump at least.  I let him go to bed as long as he’s over 100, and has no insulin on board.  I’ll recheck soon enough anyways.

What was your childs last A1C?
6.9

What kind of strips do you use?
OneTouch

Which do you prefer?
We only use OneTouch.

What kind of Peanut Butter do you use?
Jif Creamy. Or Jif Natural Creamy.  C hates the Natural though and can always tell the difference.

Do you allow juice when not low?
Yep.  Sometimes he drinks a juice box with his lunch.  He drinks ‘em when he’s headed out to the trampoline, riding bikes, whatever he does.  He definitely ends up drinking juice.  Recently, he was feeling sick of diet coke and even had a REAL root beer at a birthday party…just bolused for it.

Do you still check your child at night?
As long as I’m not so exhausted that I sleep straight through my alarms, I do.  I usually check 1-2 times after he goes to bed.  Typically this is around 11pm and 3 am.  We wake up (on weekdays) between 6:30 and 7:00am (again sleeping through my alarm that goes off at 6:00) and check then.

What is your rule on sweets?
Not many rules.  Check the ingredients for gluten, check on a real carb count (not guessing) and TRY to eat something else with it… protein or something to slow it down.

Regular pasta or whole wheat?
Neither.  Brown Rice pasta

What about veggies and fruits?
My kids live on fruit.  C eats salad, carrots, cucumbers…  No cooked veggies though, only raw.

White bread or whole wheat?
Both have been banned from our house.  We only eat Udi’s Gluten Free MultiGrain

Do you use glucose tabs?
Yep.  We use whatever’s got sugar, but the rolls of glucose tabs hold 3 quick fixes and fit in his pocket easily.  He also doesn’t have to worry about people wanting his candy for a snack.  Oh, and HE’s less likely to eat it as a snack…

What do you use to treat lows?
Whatever we’ve got around.  Glucose tabs, juice, smarties, Swedish fish, sour patch kids, lemonheads, gummy jolly ranchers, milk, yadda yadda yadda.

What does your child use to hold their pump/cgm?
his pocket.  When he doesn’t have a pocket, he just uses the clip that came with the pump (well, that one broke…I think we’re on number 3 or 4 now).  No CGM.  Insurance doesn’t cover it and he won’t use it if it means carrying something else.  We’ll wait for Animas to hook up with Dexcom in one unit.  THEN we’ll push for it.

basal changes are good

I’ve been getting up at least two to three times per night for way too long correcting C’s blood sugar.  If I didn’t, it would hit the high 200s or 300s by midnight.  Every single night.  I’ve been trying to hold out for his endo appt. which was stupid, but we made it.  We made corrections which were pretty drastic.  Maybe the biggest jump in changes ever.  So, I was nervous.  I got up way too many times last night to make sure his numbers were good.  Holy steadiness, were they!  I think the higher basal needs to switch back down a bit earlier in the morning because by the time we woke up, he was slightly low.

Dinner-81      9pm-140      11pm-110      12am-126       1am-151      2:30am-132      4am-112      7am he was down to 68.

I should be sleeping way better now.

2 weeks with the pump

Tomorrow will be 2 weeks with C’s pump.  Last Tuesday we packed up and headed to Outdoor School with his 5th grade class.  AKA 85 10-11 year olds.  His blood glucose was running between 280 and 350 for a few days.  I was stressing about it, but he couldn’t miss this trip.  He would’ve hated his diabetes if it ruined it for him.  I went with the school as a cabin leader and to keep an eye on C.  Wednesday he got really upset and emotional.  Tested and of course… 404.  I had been thinking that our Dr. got one of our settings incorrect.  C’s her first patient on an Animas pump, so it probably just was set up differently.  His correction doses were only half of what they should be.  Or his insulin sensitivity factor was double what it should be.  Same thing.  We were out of cell range and I didn’t really care about calling to check if it was ok to change anyways.  The next day after making the adjustment, he was in the one hundreds.  Closer to the 200s, but still.  A significant improvement.  This camping trip also happened to be during the craziest storm I can remember having in quite a while.  Thunder, lightening, hail and lots of rain.  Our hikes were limited due to this.  The first hike C went on on Wednesday (after changing his ISF) I was in a cabin leader meeting and they didn’t tell me they were leaving… He got back and told me that he went low twice during the 2 1/2 hour hike.  He didn’t test because the leader kept moving  AND he didn’t tell anyone.  Just ate some glucose tabs and kept going.  His numbers were pretty good other than that.  Next two days I made sure I was on the hikes and giving him gatorade while we were going.  I had the small bottles that are 20 carbs each.  I gave him 1/3 at a time about every 30-45 minutes.  When we got back from the first one his bg was 85.  Thank goodness I was there with him forcing that gatorade down or he would’ve been a mess!  Anyway, I’d call it an overall success that we went to camp in the middle of nowhere only 6 days after starting the pump and we handled everything relatively well.
Tomorrow’s his appt with the Dr.  I’m excited to see how much he weighs.  He’s been starving himself since diagnosis.  He always underestimates what he’s going to eat so he won’t get too full.  Poor guy always ends up wishing he could have another shot.  Now, I swear he’s eaten about 10 meals a day since getting on his pump.  Everytime I look at him he’s eating again.  It’s fabulous.  His whole life is centralized on eating.  So, now that he’s got gluten out of his life, which has already helped him gain a few pounds, and now eating when he’s hungry, I bet he’ll be as big as me pretty soon.

The Good Life on a Pump

So far, the pump’s been everything we expected and better.  Last Tuesday afternoon, the Animas trainer came to the house to teach us all about it and how to use it, set it up, etc.  We’d already done so much research that it didn’t seem like a lot to handle.  That night at bedtime, C’s number was well over 300 due to it being over 24 hours since his last injection of Lantus.  I was pretty nervous about how high he’d go over night, but got pretty decent sleep anyways.  Surprisingly, he woke up at 214.  No insulin in his system and his body still managed to help itself a little.  That was pretty encouraging.  The longer his body helps out, the better.
We met the pump educator at the Dr.’s office and went over all of the numbers and settings we were going to use and plugged him in.  Easy as that.  We were on our way.  As expected, C turned his normal 3 meals a day into about 10.  Back to normal.  That night, there was a school fundraiser at Chuck E Cheese, but there was also a meeting at the school for parents of 5th graders.  Grandma took the boys to Chuck E. and I went to the class.
A couple hours later I got a phone call from my mom.  C bought a little 3 oz. container of Rainbow Sherbet from a vending machine, but it had no nutritional info.  I told them I’d call right back and ran out to my car to look it up in the Carb King book.  Apparently, before I callled back C had gone on the compmany’s website (on his iPhone), went to their nutrition info page and found the carb count.  Programmed it into his pump and got to go ahead and eat.  He looked at my mom and told her “This is going to change my life.”  That’s a big statement from a kid.  But he’s right.  He has so many food restrictions, timing is the one that bothers him the most.  He eats dinner and is still hungry.  But he has to wait a couple hours before another injection.  This pump is big.
Today is day 3.  We changed his infusion set this morning.  It went perfectly smoothly except for C’s major fear or removing the old one.  He calmed down after I just grabbed it and ripped it off without giving him any more time to think about it.  Later, I was in my room and he came in.  “Mom, I just measured some of those new chips.  Can you come double check them so I can give my insulin?”  He’s never taken the initiative to do any measuring or weighing before so I was pretty surprised.  I went out and checked.  He weighed them perfectly, had the right carb number and was ready to go.  I told him it was perfect and with a giant smile he goes, “I’m learning!”